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About Me

Most days, you’ll find me driving my kids around, watching Real Housewives, cussing at the pile of laundry that never ends and laughing at the hilarious things my kids do. I am always ready to hop in the car and find my next adventure, even if it’s just Target.

I thought I had life figured out until my daughter Remy was born 7 years ago. She came into this world as perfect as can be but then everything changed. When she was 9 months old, she had seizure that would change her life in a way I could never have imagined. From hospital stays, developmental delays, a diagnosis of autism and rare form of epilepsy called PCDH19, I didn’t have the kind of tools I needed to navigate the world of special needs parenting.

About Me

Most days, you’ll find me driving my kids around, watching Real Housewives, cussing at the pile of laundry that never ends and laughing at the hilarious things my kids do. I am always ready to hop in the car and find my next adventure, even if it’s just Target.

I thought I had life figured out until my daughter Remy was born 7 years ago. She came into this world as perfect as can be but then everything changed. When she was 9 months old, she had seizure that would change her life in a way I could never have imagined. From hospital stays, developmental delays, a diagnosis of autism and rare form of epilepsy called PCDH19, I didn’t have the kind of tools I needed to navigate the world of special needs parenting.

The Podcast

In my podcast, you’ll hear raw and vulnerable insights into the world of special needs parenting. I cover topics that parents face raising children with neurological disabilities.

With a mix of inspiration, honest stories and actionable tips; my goal is to help you realize your power to be the parent you always dreamed, even if that’s in a different package than you expected.

Your child’s here to change the consciousness on our planet.  You hold the key to help them shine their amazing light into this world.

LEARN MORE ABOUT THE PODCAST

The Podcast

In my podcast, you’ll hear raw and vulnerable insights into the world of special needs parenting. I cover topics that parents face raising children with neurological disabilities.

With a mix of inspiration, honest stories and actionable tips; my goal is to help you realize, you have the power to be the parent you always dreamed, even if that’s in a different package than you expected.

Your child is here to change the consciousness on our planet and you hold the key to help them shine their amazing light into this world.

LEARN MORE ABOUT THE PODCAST!

Podcast Reviews

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Recent Podcast Episodes

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Recent Instagram Posts

What have I done?⁣
⁣
I made a huge mistake, and Remy paid the price. ⁣
⁣
Last week, when I gave Remy her meds before bed, I realized that she was out of one of her seizure drugs that I forgot to refill. ⁣
⁣
I thought we had one more day, but the bottle was empty. At 9pm at night, there was no way to get a prescription refill and for me to pick it up in time to give it to her for that dose. So she went to bed without it. ⁣
⁣
I prayed she wouldn't have a seizure while she was sleeping, and to my delight, she didn't. She woke up the next morning and was happy as can be. Relief fell over me, and I just planned to go pick it up ASAP. ⁣
⁣
Well, before I got to the pharmacy, she had a seizure. And another, and another. ⁣
⁣
There's no way to really know for sure if it was because of the missed dose, but of course, I expect that it was. ⁣
⁣
How could I be so stupid? How could I let something so important like her meds slip my mind?⁣
⁣
So that whole day and night and the next day, she had seizure after seizure after seizure. Every time it felt like a gut punch because I did this. It was my fault. ⁣
⁣
It reminded me of how much responsibility we have as special needs moms. ⁣
⁣
Our kid's safety and wellbeing are on our shoulders, and we can NOT drop the ball. ⁣
⁣
I learned my lesson big time that day. I knew better, but I just forgot. ⁣
⁣
This takes mom guilt to a whole new level. ⁣
⁣
Have you ever done something stupid like that? If you have, I hope you found forgiveness in yourself and know that we all make mistakes 
⁣
We are human, and that's what I have to remind myself of. But damn, that part of my humanity sucks. ⁣
⁣
So let this be a reminder to you. Make sure you keep those important reminders front and center of your mind. Write a calendar appointment or sticky note or whatever you need to do so you don't make the same mistake I did. ⁣

Have you ever forgotten something important like that? Or am I the only one?⁣
⁣
Happy birthday to my beautiful Remy. 

Our hearts were born the same day you were. 

Happy 7th birthday and 100 more to come.
What if I'm making a horrible mistake?

Have you ever gone back to the scene of past trauma? 

Like visiting a home where you were once abused, or running into a person who once beat you, or revisited a restaurant that gave you the worst food poisoning of your life?

Today we are traveling to UCSF. The same place that Remy spent weeks and weeks seizing in a hospital bed where we didn't know if she'd survive. 

The place I thought she'd take her last breath.

Remy had been seizing everyday over a hundred times a day. None of the drugs were working. 

We were desperate 

The neuro introduces THE drug. THE one.

But After 2 days of this drug, We saw the light leave Remys eyes. 

She stopped smiling, stopped responding, just sat in her bed staring out the window.

They assured me this wasn't normal. That they didn't know why Remy stopped responding. 

So They strapped sensors on her head to see what was going on in her brain. 

She was in a nonconvulsive status. This means she was having a seizure lasting for days. 

We stopped the drug but it didn't help

I thought we lost her.  that the one little decision to try a new drug was the decision that took Remy away from us. 

It took nearly 5 excruciating days to bring Remy back to us. And when she did come back, she had regressed. 

I had done this. It was me who gave the thumbs up to let this happen. 

It's the reason I'm terrified to try new drugs. 

What if that happened again? What if a decision I make is what destroys Remys life?

Today we go back. To start a new medication and strap on those EEG wires back on her head again.

A new drug 

Is this a huge mistake? What if her light leaves her body again?

But then again, what if she gets a break? What if she can live her life with months of seizure freedom? 

These decisions are impossible. You have to have a great deal of trust, faith and hope. But you also have terror and crippling fear. 

We signed Remy up for a trial drug. Today Remy starts that drug. 

But I have to tell you, I'm scared. 

I'm scared and I'm hopeful. two emotions that don't feel like friends.

I'm taking a leap of faith today and aIl I can say, is it feels all too familiar.
Watching Nora take care of her sister is the most precious gift I could ever ask for.
Yesterday was our first time back in the pool since all the fires here in Northern California! 
.
THEY WERE READY! To say the least! I forgot how much time they actually spend just hanging out in the pool and it’s been so nice to enjoy it again.
.
How are you doing? How’s your week been going? 🙌🏻💕
How come no one told me that?⁠
⁠
I think the biggest lie we believe about parenting is that when we have kids if we do it right, it will all be joyful and magical. ⁠
⁠
I mean, that's the only thing you really see on social media.⁠
⁠
You see the kids holding their first day of school signs. You see the kid blowing out the candles and opening up their birthday present. ⁠
⁠
You see a kid learning how to ride their bike. ⁠
⁠
That's the vision of parenting that makes us actually want to do it. ⁠
⁠
But the truth of the matter is, is that only half of parenting is joy and celebration. ⁠
⁠
The other half is pain. ⁠
⁠
The kind of pain that keeps us up at night. ⁠
⁠
The kind of pain that makes us moms question if we know what we're doing. ⁠
⁠
The kind of pain that brings us to our knees. ⁠
⁠
Because there's only so much that we can control. ⁠
⁠
Life is life. We cant always make our kids experience amazing. We cant assure that our kids are going to be happy. ⁠
⁠
They face the world the same as we do, and we can't protect them everything.⁠
⁠
But love is so worth the pain, right?⁠
⁠
It's worth feeling helpless and out of control. The time that our kids overcome a challenge or do something their scared of is worth it.⁠
⁠
Even though we are making it all up as we go, there's a sense of excitement.⁠
⁠
The way we suffer the most is when we expect parenting always to be smooth, and when it's not, we think we are doing it wrong. ⁠
⁠
⁠
So the sooner we accept that parenting is only half joy and cuddles and rainbows, and the other half is managing the heart wrenching uncontrollable pain, the less pressure we need to put on ourselves. ⁠
⁠
If you're struggling with parenting, first of all, you are NOT alone. We ALL experience both sides of the spectrum. ⁠
⁠
I think we just need to talk about that more. ⁠
⁠
What are your thoughts about parenting being half pain and have joy? ⁠
⁠
Do you agree? Or disagree? ⁠
⁠
 #motherhood #momlife #kids #family #parenthood #love #children #mumlife #autismawareness #downsyndrome #specialneedskids #autismacceptance #autismlife #autismfamily #autismparents #specialneedsmoms #specialneedsmom #specialneedsfamilies #specialneeds
Just poppin on to say hi. That's it. 

What are you up to today?
View All Instagram Posts

Recent Instagram Posts

What have I done?⁣
⁣
I made a huge mistake, and Remy paid the price. ⁣
⁣
Last week, when I gave Remy her meds before bed, I realized that she was out of one of her seizure drugs that I forgot to refill. ⁣
⁣
I thought we had one more day, but the bottle was empty. At 9pm at night, there was no way to get a prescription refill and for me to pick it up in time to give it to her for that dose. So she went to bed without it. ⁣
⁣
I prayed she wouldn't have a seizure while she was sleeping, and to my delight, she didn't. She woke up the next morning and was happy as can be. Relief fell over me, and I just planned to go pick it up ASAP. ⁣
⁣
Well, before I got to the pharmacy, she had a seizure. And another, and another. ⁣
⁣
There's no way to really know for sure if it was because of the missed dose, but of course, I expect that it was. ⁣
⁣
How could I be so stupid? How could I let something so important like her meds slip my mind?⁣
⁣
So that whole day and night and the next day, she had seizure after seizure after seizure. Every time it felt like a gut punch because I did this. It was my fault. ⁣
⁣
It reminded me of how much responsibility we have as special needs moms. ⁣
⁣
Our kid's safety and wellbeing are on our shoulders, and we can NOT drop the ball. ⁣
⁣
I learned my lesson big time that day. I knew better, but I just forgot. ⁣
⁣
This takes mom guilt to a whole new level. ⁣
⁣
Have you ever done something stupid like that? If you have, I hope you found forgiveness in yourself and know that we all make mistakes 
⁣
We are human, and that's what I have to remind myself of. But damn, that part of my humanity sucks. ⁣
⁣
So let this be a reminder to you. Make sure you keep those important reminders front and center of your mind. Write a calendar appointment or sticky note or whatever you need to do so you don't make the same mistake I did. ⁣

Have you ever forgotten something important like that? Or am I the only one?⁣
⁣
Happy birthday to my beautiful Remy. 

Our hearts were born the same day you were. 

Happy 7th birthday and 100 more to come.
What if I'm making a horrible mistake?

Have you ever gone back to the scene of past trauma? 

Like visiting a home where you were once abused, or running into a person who once beat you, or revisited a restaurant that gave you the worst food poisoning of your life?

Today we are traveling to UCSF. The same place that Remy spent weeks and weeks seizing in a hospital bed where we didn't know if she'd survive. 

The place I thought she'd take her last breath.

Remy had been seizing everyday over a hundred times a day. None of the drugs were working. 

We were desperate 

The neuro introduces THE drug. THE one.

But After 2 days of this drug, We saw the light leave Remys eyes. 

She stopped smiling, stopped responding, just sat in her bed staring out the window.

They assured me this wasn't normal. That they didn't know why Remy stopped responding. 

So They strapped sensors on her head to see what was going on in her brain. 

She was in a nonconvulsive status. This means she was having a seizure lasting for days. 

We stopped the drug but it didn't help

I thought we lost her.  that the one little decision to try a new drug was the decision that took Remy away from us. 

It took nearly 5 excruciating days to bring Remy back to us. And when she did come back, she had regressed. 

I had done this. It was me who gave the thumbs up to let this happen. 

It's the reason I'm terrified to try new drugs. 

What if that happened again? What if a decision I make is what destroys Remys life?

Today we go back. To start a new medication and strap on those EEG wires back on her head again.

A new drug 

Is this a huge mistake? What if her light leaves her body again?

But then again, what if she gets a break? What if she can live her life with months of seizure freedom? 

These decisions are impossible. You have to have a great deal of trust, faith and hope. But you also have terror and crippling fear. 

We signed Remy up for a trial drug. Today Remy starts that drug. 

But I have to tell you, I'm scared. 

I'm scared and I'm hopeful. two emotions that don't feel like friends.

I'm taking a leap of faith today and aIl I can say, is it feels all too familiar.
Watching Nora take care of her sister is the most precious gift I could ever ask for.
Yesterday was our first time back in the pool since all the fires here in Northern California! 
.
THEY WERE READY! To say the least! I forgot how much time they actually spend just hanging out in the pool and it’s been so nice to enjoy it again.
.
How are you doing? How’s your week been going? 🙌🏻💕
How come no one told me that?⁠
⁠
I think the biggest lie we believe about parenting is that when we have kids if we do it right, it will all be joyful and magical. ⁠
⁠
I mean, that's the only thing you really see on social media.⁠
⁠
You see the kids holding their first day of school signs. You see the kid blowing out the candles and opening up their birthday present. ⁠
⁠
You see a kid learning how to ride their bike. ⁠
⁠
That's the vision of parenting that makes us actually want to do it. ⁠
⁠
But the truth of the matter is, is that only half of parenting is joy and celebration. ⁠
⁠
The other half is pain. ⁠
⁠
The kind of pain that keeps us up at night. ⁠
⁠
The kind of pain that makes us moms question if we know what we're doing. ⁠
⁠
The kind of pain that brings us to our knees. ⁠
⁠
Because there's only so much that we can control. ⁠
⁠
Life is life. We cant always make our kids experience amazing. We cant assure that our kids are going to be happy. ⁠
⁠
They face the world the same as we do, and we can't protect them everything.⁠
⁠
But love is so worth the pain, right?⁠
⁠
It's worth feeling helpless and out of control. The time that our kids overcome a challenge or do something their scared of is worth it.⁠
⁠
Even though we are making it all up as we go, there's a sense of excitement.⁠
⁠
The way we suffer the most is when we expect parenting always to be smooth, and when it's not, we think we are doing it wrong. ⁠
⁠
⁠
So the sooner we accept that parenting is only half joy and cuddles and rainbows, and the other half is managing the heart wrenching uncontrollable pain, the less pressure we need to put on ourselves. ⁠
⁠
If you're struggling with parenting, first of all, you are NOT alone. We ALL experience both sides of the spectrum. ⁠
⁠
I think we just need to talk about that more. ⁠
⁠
What are your thoughts about parenting being half pain and have joy? ⁠
⁠
Do you agree? Or disagree? ⁠
⁠
 #motherhood #momlife #kids #family #parenthood #love #children #mumlife #autismawareness #downsyndrome #specialneedskids #autismacceptance #autismlife #autismfamily #autismparents #specialneedsmoms #specialneedsmom #specialneedsfamilies #specialneeds
Just poppin on to say hi. That's it. 

What are you up to today?
View All Instagram Posts

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