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About Me

Most days, you’ll find me driving my kids around, watching Real Housewives, cussing at the pile of laundry that never ends and laughing at the hilarious things my kids do. I am always ready to hop in the car and find my next adventure, even if it’s just Target.

I thought I had life figured out until my daughter Remy was born 7 years ago. She came into this world as perfect as can be but then everything changed. When she was 9 months old, she had seizure that would change her life in a way I could never have imagined. From hospital stays, developmental delays, a diagnosis of autism and rare form of epilepsy called PCDH19, I didn’t have the kind of tools I needed to navigate the world of special needs parenting.

About Me

Most days, you’ll find me driving my kids around, watching Real Housewives, cussing at the pile of laundry that never ends and laughing at the hilarious things my kids do. I am always ready to hop in the car and find my next adventure, even if it’s just Target.

I thought I had life figured out until my daughter Remy was born 7 years ago. She came into this world as perfect as can be but then everything changed. When she was 9 months old, she had seizure that would change her life in a way I could never have imagined. From hospital stays, developmental delays, a diagnosis of autism and rare form of epilepsy called PCDH19, I didn’t have the kind of tools I needed to navigate the world of special needs parenting.

The Podcast

In my podcast, you’ll hear raw and vulnerable insights into the world of special needs parenting. I cover topics that parents face raising children with neurological disabilities.

With a mix of inspiration, honest stories and actionable tips; my goal is to help you realize your power to be the parent you always dreamed, even if that’s in a different package than you expected.

Your child’s here to change the consciousness on our planet.  You hold the key to help them shine their amazing light into this world.

LEARN MORE ABOUT THE PODCAST

The Podcast

In my podcast, you’ll hear raw and vulnerable insights into the world of special needs parenting. I cover topics that parents face raising children with neurological disabilities.

With a mix of inspiration, honest stories and actionable tips; my goal is to help you realize, you have the power to be the parent you always dreamed, even if that’s in a different package than you expected.

Your child is here to change the consciousness on our planet and you hold the key to help them shine their amazing light into this world.

LEARN MORE ABOUT THE PODCAST!

Podcast Reviews

Podcast Reviews

Recent Instagram Posts

Let's talk about grief for a minute. ⁣⁠⠀ ⁣ Let's talk about grief for a minute. ⁣⁠⠀
⁣⁠⠀
I think that grief comes and goes in all of our lives. ⁣⁠⠀
⁣⁠⠀
I grieved the loss of the idea I had about who Remy would be. I thought she would be "normal," and she wasn't. ⁣⁠⠀
I realize that its something that we moms should get over, but it's not easy. ⁣⁠⠀
⁣⁠⠀
I don't know why. ⁣⁠⠀
⁣⁠⠀
Maybe we feel in some way we failed our kids. Perhaps we worry about them. Maybe we don't want to be different. Perhaps we're afraid we cant relate. ⁣⁠⠀
⁣⁠⠀
I don't know. It's probably a whole mixed bag. ⁣⁠⠀
⁣⁠⠀
But what I do know is that grief hurts. ⁣⁠⠀
⁣⁠⠀
It comes out in ugly ways. ⁣⁠⠀
⁣⁠⠀
I know first hand because now I'm grieving someone else. My mom. ⁣⁠⠀
⁣⁠⠀
I lost her a few weeks ago, and I can't snap out of it. ⁣⁠⠀
⁣⁠⠀
I have so many regrets. So many things I wish I could go back and say. So much sadness about how I treated her. ⁣⁠⠀
⁣⁠⠀
So here's what I am learning. ⁣⁠⠀
⁣⁠⠀
When you are grieving, it comes out like this. ⁣⁠⠀
⁣⁠⠀
Being sensitive to what others say. Being short-tempered, withdrawn. ⁣⁠⠀
Crying for no reason. Not having the will to do all the things you used to put a lot of energy into. ⁣⁠⠀
⁣⁠⠀
You want help, but don't want anyone talking to you. ⁣⁠⠀
⁣⁠⠀
You want to feel peace but are soo consumed with sadness and anger and hopelessness. ⁣⁠⠀
⁣⁠⠀
If you are grieving something, your child, a loved one who has passed, your old life before quarantine, Hang in there. ⁣⁠⠀
⁣⁠⠀
This, too, shall pass. ⁣⁠⠀
⁣⁠⠀
Youll find that pep in your step again. ⁣⁠⠀
⁣⁠⠀
This pain is necessary to grow. To heal. ⁣⁠⠀
⁣⁠⠀
It's not for nothing. ⁣⁠⠀
⁣⁠⠀
So chin up, my friend. We will get through these trying times together.⁣⁠⠀
⁣⁠⠀
What's an area you are grieving right now? Let me know. Saying it out loud, or on Instagram sometimes helps. ⁣⁠⠀
You know whos on my mind? YOU are on my mind. ⁣⁣⁠
⁣⁣⁠
I thought we could get to know each other a little more.⁣⁣⁠
⁣⁣⁠
I will share some things about me and then I would LOVE to hear some things about you.⁣⁣⁠
⁣⁣⁠
I married my neighbor and my best friend became my sister in law and aunt to my children. So cool!⁣⁣⁠
⁣⁠
When I was 18, I flew across the country to meet my 4 half brothers and half sister and a gazillion cousins, aunts and uncles and grandma that I didn't even know existed a couple of years earlier. ⁣⁣⁠
⁣⁣⁠
I have broken teeth in half twice in my life, both while eating candy that I swore I wasn't going to eat. Talk about karma. ⁣⁣⁠
⁣⁣⁠
I am an INFP on the Myers Briggs personality test. and split between a 2 and 9 on the Enneagram.⁠
⁣⁣⁠
I go on a date with each one of my kids and husband every single week and it's my favorite part of life.⁣⁣⁠
⁣⁣⁠
I used to be an extravert until my 30's and now am the happiest being by myself. (that's so sad)⁣⁣⁠
⁣⁣⁠
I didn't realize that by default having 4 kids automatically makes it seem like you know what you're doing 🤷🏽‍♀️⁣⁣ I dont⁠
⁣⁣⁠
My daughter Remy who has autism and epilepsy is my spiritual teacher.⁣⁣⁠
⁣⁣⁠
The happiest place in the world to me is on a boat. Any kind of boat. well, actually not the kind of boat that I manually have to move, but any other kind.⁣⁣⁠
⁣⁣⁠
I haven't worn my Invisalign in two a year. (don't tell my dentist)⁣⁣⁠
⁣⁠
I realize that the most authentic, real, genuine, strong human beings are those who have or are affected by a person with special needs. ⁣⁣⁠
⁣⁠
My favorite new thing in my life is meeting people like you and hearing your stories.⁣⁣⁠
⁣⁣⁠
Now its your turn. Please tell me about yourself in the comments. Anything that comes to mind. I LOVE getting to know you. ⁣
⁣⁠ This is for you mamas whose heart broke in ⁣⁠
This is for you mamas whose heart broke in half when they told you your child has autism. ⁣⁣⁠
⁣⁠
To the mom who feels like karma struck your child because of something terrible, You must have done.⁣⁣⁠
⁣⁠
To the mom whose worst nightmare came true when you heard, "there is no cure." ⁣⁣⁠
⁣⁣⁠
To the mom who doesn't have support, experience, help, or guidance on raising a child as complex as yours. ⁣⁣⁠
⁣⁠
To the mom whos scared and sad and stressed because every minute of the day, you are reminded of how much you're failing everything. ⁣⁣⁠
⁣⁠
I want you to hear me when I say ⁣⁣⁠
⁣⁠
You are doing great. You are exactly where you need to be. You are THE person for this job. Your child was sent to YOU because there is something that only you can give.⁣⁣⁠
⁣⁠
No one will love your child like you. No one would be quicker to die for your child than you. No one can see the preciousness of your child the way you can. ⁣⁣⁠
⁣⁠
You may not have the support, resources, knowledge, patience, money, or wisdom to give your child what you want. ⁣⁣⁠
⁣⁠
But let me tell you something.⁣⁣⁠
⁣⁠
That love you have for your child will move mountains even when you can't imagine how. That love you have will find support. That love will gain wisdom. That love will find the money. That love will carry you every step of the way.⁣⁣⁠
⁣⁠
And just when you feel ultimately defeated and can't go on, your child will give you that look that only she can provide, and your heart will melt. ⁣⁣⁠
⁣⁠
Your child will do something she's never done before, and you will fall to your knees in gratitude and amazement. ⁣⁣⁠
⁣⁠
Your child is a miracle, and you have a front-row seat to see God's most beautiful creation. ⁣⁣⁠
⁣⁠
I know its hard, I know its lonely, I know you're tired. But you are your child's biggest blessing, and that is a pretty special place to be.⁣⁣⁠
⁣⁣⁠
Chin up, mama, tomorrow is a new day.⁣⁣⁠
⁣⁠
If this message speaks to you today, hit the heart button. It was made just for you. ⁣
“You find peace not by rearranging the circumsta “You find peace not by rearranging the circumstances of your life, but by realizing who you are at the deepest level.” ⁠⁣⁠
― Eckhart Tolle⁠⁣⁠
⁠⁣⁠
Do you ever wonder how life would be if your child didn't have autism? If she just came home from school and told you about her day? Or spent months dreaming of what she would be for Halloween?⁠⁣⁠
⁠⁣⁠
Is there a part of you that feels like life would be so much easier if autism wasn't even part of your life at all?⁠⁣⁠
⁠⁣⁠
I feel like the "what ifs" play a big role in the human mind. Its how we evolve as humans. We see a flaw and we fix it. We get tired of walking so we invent the car. We get frustrated that we can't see in the dark so we invent the light bulb. ⁠⁣⁠
⁠⁣⁠
But what happens when we dream of what our kids might be and spend all our time trying to fix them?⁠⁣⁠
⁠⁣⁠
What is it that we want? ⁠⁣⁠
⁠⁣⁠
I believe that all we ever want is peace. Comfort and peace and no challenges at all. ⁠⁣⁠
⁠⁣⁠
What I am learning is that to find peace, you don't have to buy something, fix something, learn something. ⁠⁣⁠
⁠⁣⁠
Peace is there with us whenever we want it. ⁠⁣⁠
⁠⁣⁠
But if it's right there, how do we access it. ⁠⁣⁠
⁠⁣⁠
Our kids are our biggest teacher and they show us peace every day (well, maybe not every day 😏)⁠⁣⁠
⁠⁣⁠
Peace in the very moment they're in. Not thinking about tomorrow or dwelling about yesterday. Just simply there in the moment. ⁠⁣⁠
⁠⁣⁠
I find this to be a very hard practice but the most important one. ⁠⁣⁠
⁠⁣⁠
The more we try and find peace outside ourselves, in the future or when we have more money or a fixed child, the more we suffer. ⁠⁣⁠
⁠⁣⁠
My challenge for you today is to set a timer and be fully present with your child for 10 minutes. No distractions, no thoughts about the next activity, just be with them. ⁠⁣⁠
⁠⁣⁠
If you are looking for peace, see how that feels. ⁠⁣⁠
and let me know how it goes.⁠⁣⁠
⁠⁣⁠
⁣⁠
when do you feel the most at peace?⁣⁠
⁣⁠
Save, Share this or tag a friend who could use this thought
This is Remy⁣ ⁣ Remys not having a good day to This is Remy⁣
⁣
Remys not having a good day today. ⁣
⁣
She woke up to start her day, and instead of getting dressed, having breakfast and starting ABA therapy, she had a seizure. ⁣
⁣
Actually, she had 12 seizures, all before lunch. ⁣
⁣
This is her life. She's been having seizures like this since she was 9 months old. ⁣
⁣
While most of her days are sunny, every 1-4 weeks, the black cloud comes, and the darkness hovers around for a couple days. ⁣
⁣
She has clustered seizures. When she has one, she has a lot more, all in a short amount of time. ⁣
⁣
Today they were every 10 minutes. ⁣
⁣
We found out when she was a year old that she has a rare genetic disorder called PCDH19. It's so rare that they couldn't think of a better name for the mutated neurological gene. ⁣
⁣
She didn't "catch" this disorder from Zach or me, she is what they call De Novo (starting from the beginning)⁣
⁣
We don't know why she has this disorder. But we do know that its vicious and there is no cure. ⁣
⁣
One of the first characteristics that I read about PCDH19 is the word "Drug-Resistant," which means it's hard to treat. ⁣
⁣
If I could take her seizures away, I would in a heartbeat. I hate that she suffers like this. ⁣
⁣
But we can't take them away. The only thing we can do is treat as best as we can and learn all the lessons epilepsy is here to teach us. ⁣
⁣
One of those lessons is to live in the moment and cherish the good days. Not to wait to enjoy life but to embrace the present moment as much as you can. ⁣
⁣
This is a struggle I have. ⁣
⁣
Always worrying about what might happen, stressing about a future that may or may not happen and focusing on things that don’t really matter. ⁣
⁣
When Remy has seizures, it reminds me to be thankful for the good, because you never know when the black clouds will return. ⁣
⁣
For that, I'm grateful. For Remy, I'm grateful. ⁣
⁣
I may not have the answers, but I will just sit down in the front row and be the best student I can be. ⁣
⁣
The only thing that’s for sure is I will love her and protect her every precious day shes here on this earth. ⁣
⁣
I want to know what humbles you? What do you have in your life that reminds you to appreciate the good?⁣
View All Instagram Posts

Recent Instagram Posts

Let's talk about grief for a minute. ⁣⁠⠀ ⁣ Let's talk about grief for a minute. ⁣⁠⠀
⁣⁠⠀
I think that grief comes and goes in all of our lives. ⁣⁠⠀
⁣⁠⠀
I grieved the loss of the idea I had about who Remy would be. I thought she would be "normal," and she wasn't. ⁣⁠⠀
I realize that its something that we moms should get over, but it's not easy. ⁣⁠⠀
⁣⁠⠀
I don't know why. ⁣⁠⠀
⁣⁠⠀
Maybe we feel in some way we failed our kids. Perhaps we worry about them. Maybe we don't want to be different. Perhaps we're afraid we cant relate. ⁣⁠⠀
⁣⁠⠀
I don't know. It's probably a whole mixed bag. ⁣⁠⠀
⁣⁠⠀
But what I do know is that grief hurts. ⁣⁠⠀
⁣⁠⠀
It comes out in ugly ways. ⁣⁠⠀
⁣⁠⠀
I know first hand because now I'm grieving someone else. My mom. ⁣⁠⠀
⁣⁠⠀
I lost her a few weeks ago, and I can't snap out of it. ⁣⁠⠀
⁣⁠⠀
I have so many regrets. So many things I wish I could go back and say. So much sadness about how I treated her. ⁣⁠⠀
⁣⁠⠀
So here's what I am learning. ⁣⁠⠀
⁣⁠⠀
When you are grieving, it comes out like this. ⁣⁠⠀
⁣⁠⠀
Being sensitive to what others say. Being short-tempered, withdrawn. ⁣⁠⠀
Crying for no reason. Not having the will to do all the things you used to put a lot of energy into. ⁣⁠⠀
⁣⁠⠀
You want help, but don't want anyone talking to you. ⁣⁠⠀
⁣⁠⠀
You want to feel peace but are soo consumed with sadness and anger and hopelessness. ⁣⁠⠀
⁣⁠⠀
If you are grieving something, your child, a loved one who has passed, your old life before quarantine, Hang in there. ⁣⁠⠀
⁣⁠⠀
This, too, shall pass. ⁣⁠⠀
⁣⁠⠀
Youll find that pep in your step again. ⁣⁠⠀
⁣⁠⠀
This pain is necessary to grow. To heal. ⁣⁠⠀
⁣⁠⠀
It's not for nothing. ⁣⁠⠀
⁣⁠⠀
So chin up, my friend. We will get through these trying times together.⁣⁠⠀
⁣⁠⠀
What's an area you are grieving right now? Let me know. Saying it out loud, or on Instagram sometimes helps. ⁣⁠⠀
You know whos on my mind? YOU are on my mind. ⁣⁣⁠
⁣⁣⁠
I thought we could get to know each other a little more.⁣⁣⁠
⁣⁣⁠
I will share some things about me and then I would LOVE to hear some things about you.⁣⁣⁠
⁣⁣⁠
I married my neighbor and my best friend became my sister in law and aunt to my children. So cool!⁣⁣⁠
⁣⁠
When I was 18, I flew across the country to meet my 4 half brothers and half sister and a gazillion cousins, aunts and uncles and grandma that I didn't even know existed a couple of years earlier. ⁣⁣⁠
⁣⁣⁠
I have broken teeth in half twice in my life, both while eating candy that I swore I wasn't going to eat. Talk about karma. ⁣⁣⁠
⁣⁣⁠
I am an INFP on the Myers Briggs personality test. and split between a 2 and 9 on the Enneagram.⁠
⁣⁣⁠
I go on a date with each one of my kids and husband every single week and it's my favorite part of life.⁣⁣⁠
⁣⁣⁠
I used to be an extravert until my 30's and now am the happiest being by myself. (that's so sad)⁣⁣⁠
⁣⁣⁠
I didn't realize that by default having 4 kids automatically makes it seem like you know what you're doing 🤷🏽‍♀️⁣⁣ I dont⁠
⁣⁣⁠
My daughter Remy who has autism and epilepsy is my spiritual teacher.⁣⁣⁠
⁣⁣⁠
The happiest place in the world to me is on a boat. Any kind of boat. well, actually not the kind of boat that I manually have to move, but any other kind.⁣⁣⁠
⁣⁣⁠
I haven't worn my Invisalign in two a year. (don't tell my dentist)⁣⁣⁠
⁣⁠
I realize that the most authentic, real, genuine, strong human beings are those who have or are affected by a person with special needs. ⁣⁣⁠
⁣⁠
My favorite new thing in my life is meeting people like you and hearing your stories.⁣⁣⁠
⁣⁣⁠
Now its your turn. Please tell me about yourself in the comments. Anything that comes to mind. I LOVE getting to know you. ⁣
⁣⁠ This is for you mamas whose heart broke in ⁣⁠
This is for you mamas whose heart broke in half when they told you your child has autism. ⁣⁣⁠
⁣⁠
To the mom who feels like karma struck your child because of something terrible, You must have done.⁣⁣⁠
⁣⁠
To the mom whose worst nightmare came true when you heard, "there is no cure." ⁣⁣⁠
⁣⁣⁠
To the mom who doesn't have support, experience, help, or guidance on raising a child as complex as yours. ⁣⁣⁠
⁣⁠
To the mom whos scared and sad and stressed because every minute of the day, you are reminded of how much you're failing everything. ⁣⁣⁠
⁣⁠
I want you to hear me when I say ⁣⁣⁠
⁣⁠
You are doing great. You are exactly where you need to be. You are THE person for this job. Your child was sent to YOU because there is something that only you can give.⁣⁣⁠
⁣⁠
No one will love your child like you. No one would be quicker to die for your child than you. No one can see the preciousness of your child the way you can. ⁣⁣⁠
⁣⁠
You may not have the support, resources, knowledge, patience, money, or wisdom to give your child what you want. ⁣⁣⁠
⁣⁠
But let me tell you something.⁣⁣⁠
⁣⁠
That love you have for your child will move mountains even when you can't imagine how. That love you have will find support. That love will gain wisdom. That love will find the money. That love will carry you every step of the way.⁣⁣⁠
⁣⁠
And just when you feel ultimately defeated and can't go on, your child will give you that look that only she can provide, and your heart will melt. ⁣⁣⁠
⁣⁠
Your child will do something she's never done before, and you will fall to your knees in gratitude and amazement. ⁣⁣⁠
⁣⁠
Your child is a miracle, and you have a front-row seat to see God's most beautiful creation. ⁣⁣⁠
⁣⁠
I know its hard, I know its lonely, I know you're tired. But you are your child's biggest blessing, and that is a pretty special place to be.⁣⁣⁠
⁣⁣⁠
Chin up, mama, tomorrow is a new day.⁣⁣⁠
⁣⁠
If this message speaks to you today, hit the heart button. It was made just for you. ⁣
“You find peace not by rearranging the circumsta “You find peace not by rearranging the circumstances of your life, but by realizing who you are at the deepest level.” ⁠⁣⁠
― Eckhart Tolle⁠⁣⁠
⁠⁣⁠
Do you ever wonder how life would be if your child didn't have autism? If she just came home from school and told you about her day? Or spent months dreaming of what she would be for Halloween?⁠⁣⁠
⁠⁣⁠
Is there a part of you that feels like life would be so much easier if autism wasn't even part of your life at all?⁠⁣⁠
⁠⁣⁠
I feel like the "what ifs" play a big role in the human mind. Its how we evolve as humans. We see a flaw and we fix it. We get tired of walking so we invent the car. We get frustrated that we can't see in the dark so we invent the light bulb. ⁠⁣⁠
⁠⁣⁠
But what happens when we dream of what our kids might be and spend all our time trying to fix them?⁠⁣⁠
⁠⁣⁠
What is it that we want? ⁠⁣⁠
⁠⁣⁠
I believe that all we ever want is peace. Comfort and peace and no challenges at all. ⁠⁣⁠
⁠⁣⁠
What I am learning is that to find peace, you don't have to buy something, fix something, learn something. ⁠⁣⁠
⁠⁣⁠
Peace is there with us whenever we want it. ⁠⁣⁠
⁠⁣⁠
But if it's right there, how do we access it. ⁠⁣⁠
⁠⁣⁠
Our kids are our biggest teacher and they show us peace every day (well, maybe not every day 😏)⁠⁣⁠
⁠⁣⁠
Peace in the very moment they're in. Not thinking about tomorrow or dwelling about yesterday. Just simply there in the moment. ⁠⁣⁠
⁠⁣⁠
I find this to be a very hard practice but the most important one. ⁠⁣⁠
⁠⁣⁠
The more we try and find peace outside ourselves, in the future or when we have more money or a fixed child, the more we suffer. ⁠⁣⁠
⁠⁣⁠
My challenge for you today is to set a timer and be fully present with your child for 10 minutes. No distractions, no thoughts about the next activity, just be with them. ⁠⁣⁠
⁠⁣⁠
If you are looking for peace, see how that feels. ⁠⁣⁠
and let me know how it goes.⁠⁣⁠
⁠⁣⁠
⁣⁠
when do you feel the most at peace?⁣⁠
⁣⁠
Save, Share this or tag a friend who could use this thought
This is Remy⁣ ⁣ Remys not having a good day to This is Remy⁣
⁣
Remys not having a good day today. ⁣
⁣
She woke up to start her day, and instead of getting dressed, having breakfast and starting ABA therapy, she had a seizure. ⁣
⁣
Actually, she had 12 seizures, all before lunch. ⁣
⁣
This is her life. She's been having seizures like this since she was 9 months old. ⁣
⁣
While most of her days are sunny, every 1-4 weeks, the black cloud comes, and the darkness hovers around for a couple days. ⁣
⁣
She has clustered seizures. When she has one, she has a lot more, all in a short amount of time. ⁣
⁣
Today they were every 10 minutes. ⁣
⁣
We found out when she was a year old that she has a rare genetic disorder called PCDH19. It's so rare that they couldn't think of a better name for the mutated neurological gene. ⁣
⁣
She didn't "catch" this disorder from Zach or me, she is what they call De Novo (starting from the beginning)⁣
⁣
We don't know why she has this disorder. But we do know that its vicious and there is no cure. ⁣
⁣
One of the first characteristics that I read about PCDH19 is the word "Drug-Resistant," which means it's hard to treat. ⁣
⁣
If I could take her seizures away, I would in a heartbeat. I hate that she suffers like this. ⁣
⁣
But we can't take them away. The only thing we can do is treat as best as we can and learn all the lessons epilepsy is here to teach us. ⁣
⁣
One of those lessons is to live in the moment and cherish the good days. Not to wait to enjoy life but to embrace the present moment as much as you can. ⁣
⁣
This is a struggle I have. ⁣
⁣
Always worrying about what might happen, stressing about a future that may or may not happen and focusing on things that don’t really matter. ⁣
⁣
When Remy has seizures, it reminds me to be thankful for the good, because you never know when the black clouds will return. ⁣
⁣
For that, I'm grateful. For Remy, I'm grateful. ⁣
⁣
I may not have the answers, but I will just sit down in the front row and be the best student I can be. ⁣
⁣
The only thing that’s for sure is I will love her and protect her every precious day shes here on this earth. ⁣
⁣
I want to know what humbles you? What do you have in your life that reminds you to appreciate the good?⁣
View All Instagram Posts

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  • This field is for validation purposes and should be left unchanged.